I received a call from my case manager yesterday and, once again, the weekend agency dropped the Sat and Sun night shift.           [I wasn't surprised, the caregiver that was here Sat and Sun, claimed, as she left my home on Sunday, that she had been only told to work for the two days. Except she and I had spoken at length the night before about my needing weekend care and how much I appreciated her taking the hours. I have no idea how she can NOT mention just a little earlier that she wasn't returning NEXT weekend.]              Within the hour, I received a call from another agency confirming my address and location, letting me know they had someone available. Waiting now for confirmation. Caregiver Roulette. No wonder my nerves are shot.

I've been trying to read up on the laws and Rules within the state of Arizona as well as groups to join to make things happen, make things better, at least stability would be nice.

Home | Elderly and Physically Disabled Providers Alliance has some great info on how things work in general in government and more specifics in Arizona.

I finished reading the Arizona Administrative Code. Enlightening.

I've also been listening to podcasts and such of several disability advocates from around the country. There are a lot of us. We shouldn't have to fight so hard to make sure we have the simple 'privilege' of getting out of bed in the morning, with a shower and clean clothes. A lot of us could work and be functioning citizens if that seemingly simple event could be guaranteed.