Passing time...

It's been a long time. Things did NOT go as we had all hoped. The county did not concern itself with our issues. There are now 30+ for profit agencies open for business in Tucson. Care givers wages dropped to an average of $8.00, though some are higher. Agencies don't pay for CPR and TB testing, which the county DID. On average, my personal experience has been a definitive lack of training from the agencies, though they claim to supply basics to their employees. I believe these claims can only be based on the employees own personal experiences and training, gained mostly outside and before hiring into some of these for profit agencies. 

As usual, I have fought my own battle for good care. It's exhausting. I know how to advocate for myself, I know how to make sure my personal care is what I need. But so many people fall short in knowing how to provide GOOD care. And the agencies are not concerned with training for high quality. Minimum care, maximum profit. I am extremely lucky at the present time, having gone through several agencies, the one I am currently using has staff who DO know what they are doing and listen to me. Both rare commodities. 

In my daily care, I've had to explain and repeat to each new caregiver details and the reasons therein. Did I mention it's exhausting? But there are so many people out in the world with need for physical and mental health care who cannot speak for it. 

I commented yesterday on an article concerning a woman's frank talk about her disabled toddler and how damned difficult their lives are. She stated she does love her child, but if she could change things, she would have chosen to terminate the pregnancy. I admire her honesty. But too many people in the comments damned her for even suggesting the thing. And I say, fuck you for denying her the right to speak her mind. Basically, I don't think you get an opinion unless you are either in the situation or similar OR have spent all of your own free time volunteering in group homes and nursing homes, taking time to not just make sure their physical care is GOOD, but also just being a companion, talking to, playing games with, something. Otherwise, shut the hell up. 

Okay, going away for now. 
Be Well!